Baby Joseph’s story

Baby Joseph Maraachli, who was at the heart of a fierce medical care debate, died on Sept 27th. The little Ontario boy had a progressive neurological disease, and had just turned turned 20 months the week before. He died that Tuesday afternoon at his home in Windsor, Ont., with his parents and relatives at his side.

Joseph’s father questions why he had to travel to the U.S. to obtain the care he wanted for Joseph. Doctors at the London Hospital refused to perform a tracheotomy. Doctors in London wanted to turn off Baby Joseph’s ventilator, but Joseph’s parents requested a tracheotomy be performed allowing him to breathe on his own. Joseph had a progressive neurological disease. His parents, Moe Maraachli and Sana Nader, had lost another child to the same neurodegenerative disease eight years ago. A tracheotomy had been performed on his sister allowing her parents to bring her home and Joseph’s parents wanted the same for him. Joseph would have died after being removed from his ventilator. Joseph’s parents knew his condition was fatal. His sister had lived another six months at home following her tracheotomy.

The hospital agreed to send Joseph home but without performing a tracheotomy. He would be removed from the ventilator at home.

After an Ontario court ruled that doctors could remove the child’s breathing tube, the parents took Joseph to a St. Louis hospital, thanks to the help of New York City-based Priests for Life, which works against abortion and euthanasia to promote a culture of life. The financial support and help received from Father Pavone of Priests for Life made it possible for the Maraachli family to bring Joseph to the U.S.

16 month old baby Joseph had responded well to treatment, and a tracheotomy was performed at Cardinal Glennon Children’s Medical Centre in St. Louis in March 2011.

Dr. Robert Wilmont, chief of Pediatrics for the St. Louis hospital and the St. Louis University School of Medicine said: “By providing him with this common palliative procedure, we’ve given Joseph the chance to go home and be with his family after spending so much of his young life in the hospital.”

So Baby Joseph lived comfortably for another six months surrounded by the love of his family and friends.

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1 Response to Baby Joseph’s story

  1. Margherita says:

    young child is in PICUBrain dead maybe but YOUR kidYou would want to CHOOSE how your child is treated right?But the Govt docotrs come in and say hey that child is going to die so we disconnect the vent and wait and wait and wait (trust me I’ve seen it)But wait you are the mom you want a trach(tiny incision in the midlateral throat area) and take your child home I am somewhat amazed at your comment regarding painlessly let go Guessing you have never faced this and your parents are still aliveThe DNR issue has been floating thru halls of hospitals for years.If your loved ones have a living will it won’t mean jack sh** if they have a massive MI (myocardial infarction) on the golf course because the EMT’s will arrive and intubate them immediately.Try getting that tube out. Legally you don’t stand a chance so your dad or mom will lay there for weeks and eventually die of some horrid infection.(yes I have that teeshirt also)So pardon me for being so compassionate about my career but really now especially EVERYONE needs a medical supervisor to oversee their rights. I have told my kids ASSUME NOTHING when it comes to medical care

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